Here
are links you may find helpful for learning
about and managing your illness, which are the first steps toward
having a less stressful and more satisfying and meaningful life:
Links for Specific Chronic Illnesses
General Chronic Illness Support, Connection, and Information Links
Alternative Medicine Links
Help and Advocacy Links
Helpful Books
Arthritis
Arthritis Foundation
Arthritis disease, treatment,
and support information.
Arthritis Research and Therapy
Find out about the latest arthritis
research here.
Cancer
Mesothelioma.com Provides lots lf helpful and invaluable information about
this often deadly cancer, which is caused by exposure to asbestos.
R. A. Bloch Cancer Foundation Richard Bloch won his battle with lung cancer in 1980, then
created the non-profit R. A. Bloch Cancer Foundation to help others. One of the
best features of the site is the many wonderful articles by Mr. Bloch and his wife.
Chronic Fatigue and
Immune Dysfunction Syndrome (CFIDS)
CFIDS/Fibromyalgia Self-Help
Excellent site with lots of articles.
CFIDS (Chronic Fatigue Immune Dysfunction Syndrome)/Fibromayalgia
Self-Help is a non-profit organization that helps people with
those diseases.
Crohn's Disease and Ulcerative
Colitis
Crohn's and Colitis Foundation of America
Crohn's Disease FAQs
A good description of the disease,
its causes, its symptoms, its history, and information about
treatments and the side effects of drugs used to treat it.
Bacterial and viral causes of Crohn's
disease A well
written article that describes possible causes of Crohn's
colitis and how diet, herbs, and probiotics can help treat
them.
Crohn's Disease and Stress
Ed Kalski's site is about the
many ways Crohn's disease and stress affect each other, but
it has lots of other helpful information as well.
Jini Patel Thompson's Site
Jini is the author of Listen To Your Gut,
The IBD Remission Diet, and the e-book Listen To Your IBS. Her site has IBS
and IBD natural healing forums, a
list of health practitioners whom others have recommended, excellent
articles about the causes of and natural treatments for inflammatory bowel disease
and irritable bowel syndrome, and helpful links.
Chronic Pain
Freedom from Chronic Pain
Professor and Doctor Brian Rothbart has spent many years studying chronic
pain, and has developed a unique and effective method for eliminating it in many cases.
Diabetes
American Diabetes Association
National Diabetes Information Clearinghouse
Basic, treatment, and clinical
trial information about diabetes.
Fibromyalgia
The Fibromyalgia Support Center
A very helpful resource for people
with fibromyalgia. It has over 80 articles to help them
learn about and treat this painful disease.
Fibromyalgia Doctor NYC | Chronic Fatigue Syndrome Treatment NYC Dr Ricki Mitchell specializes in treating fibromyalgia, chronic fatigue syndrome, candida, and vulvodynia, and in bio-identical hormone and thyroid optimization.
Everyday Health's Fibromyalgia Basics page has information about the causes, the management, and the treatment of fibromyalgia; how to get support when you have it; and many other related topics.
FibroCare Center Information
about Fibromyalgia and the FibroCare Program offered at Point
Chiropractic Center in Point Pleasant New Jersey, a multifaceted
program to help people who suffer from Fibromyalgia improve
their quality of life.
National Fibromyalgia Partnership Has
lots of disease and research information about fibromyalgia.
Also see the CFIDS/Fibromyalgia Self-Help link above.
Irritable Bowel Syndrome
Jini Patel Thompson's Site
Jini is the author of Listen To Your Gut,
The IBD Remission Diet, and the e-book Listen To Your IBS. Her site has IBS
and IBD natural healing forums, a
list of health practitioners whom others have recommended, an excellent article
entitled "Natural Remedies That Work: Irritable
Bowel Syndrome (IBS)," and helpful links.
Lupus
Lupus Foundation of America
The Lupus Site
Has lupus symptom, diagnosis, and treatment
information. Also has a chat room and message boards where
you can talk to others with lupus.
Lyme Disease
Lyme Disease Network Very
good medical and support information for Lyme Disease; also
has links to other helpful sites.
Lyme Disease Infographic Also lists Lyme disease symptoms, as well as information about
how to avoid getting it.
Multiple Sclerosis
Myelin Repair Foundation
Their mission is "to rapidly accelerate the discovery of myelin
repair treatments to improve the lives of people suffering
from Multiple Sclerosis (MS)."
Good Docs A
state by state list of doctors who have been given high marks
by people with MS.
National Multiple Sclerosis Society
Parkinson's Disease
National Parkinson Foundation gives
patients and caregivers the resources to help them fight back.
Parkinson's Disease Society
A UK organization dedicated to
supporting all people with Parkinson's, their families, friends
and carers. Has lots of helpful information for people newly
diagnosed, for young people with Parkinson's, and for families
and caregivers.
Ulcerative Colitis see
Crohn's Disease and Ulcerative Colitis
General Chronic Illness Support, Connection, and Information Links
Yale New Haven Health Library
A wealth of medical information:
in-depth descriptions and research about hundreds of diseases
including symptoms, prevention methods, and treatment options;
information on more than 2,400 prescription medications; self-help
resources; complementary medicine; and more.
MDJunction Has online
support groups for many different chronic illnesses.
Shepherd of Hope Christian Chat and Chronic Illness Support
Has a very supportive
chat room that has special guest "speakers" from time to time, a list
of coping suggestions, and other helpful resources.
HealingWell Features
health articles, medical news, doctor-produced video webcasts,
community message boards and chat rooms, email, newsletters,
books and reviews, and resource directories on diseases, disorders
and chronic illness.
Stanford Health Library
Lots of medical information.
Also offers free research at (800) 295-5177.
ClinicalTrials A
US government site that lists late-breaking medical news and
new medical research studies that need volunteers.
Courage to Give
Jackie Waldman, who has multiple sclerosis
herself, has written several inspiring books with stories
about people who, suffering from chronic illnesses and other
serious physical and emotional hardships, have gone beyond
their own suffering to help others; they all found that the
contributions they made played a large and essential role
in their own healing process.
Psychologist Lori Rokicki's site
The links by disorder button halfway down the page provides
links to information and support groups for many chronic illnesses.
Alternative Medicine Links
Full Potential Living certified health coach Robin Arutt
While there is a fair amount of overlap between my services and the ones Robin offers, she
helps people more with the things they can do and the changes they can make to help their bodies, while I help people
more with the things they can do to lessen the depression, anxiety, and hopelessness that the majority of
people suffering from chronic illnesses experience. You will benefit a lot from Robin's knowledge, experience, and
healing ability..
Natural Therapy Health Consultant Jonathan Campbell
Jonathan's informative site describes natural therapies
for chronic fatigue, type II diabetes, cancer, hepatitis C, and many
other illnesses and conditions.
healingdeva.com Alternative
medicine descriptions and information. Also lists top alternative
doctors.
Help and Advocacy Links
Needy Meds
A website that maintains a list of
drug company programs that provide free medications to those in
need, and also a list of national and local programs that provide
assistance to people with chronic illnesses.
Advocacy for Patients with
Chronic Illnesses Founded by attorney Jennifer Jaff. Free
information, advice, and advocacy services from volunteers trained to help you secure your rights.
Patient Advocate Foundation seeks to safeguard patients' access to medical care,
maintenance of employment, and financial stability through mediation
with insurers, employers, and creditors.
AbilityLinks
matches people who, because of illness related and other disabilities aren't
able to work the standard 40 hour week,
with accommodating employers. Non-profit AbilityLinks is based near Chicago but is expanding to
provide nationwide service.
Job Accomodation Network
a free service of the Office of Disability Employment Policy that
gives people with disablities, including chronic illnesses,
resources to help them find a job or start their own business. Has
a toll free number to call.
Gimp on the Go Travel Tips
Adam Lloyd, the person behind the Gimp on the Go website, is a quadraplegic
who has not let his disability prevent him from having an active academic, business, and travel life. The
tips page on the site provides lots of helpful information for disabled travelers.
Medical Malpractice Help
Extensive information about what you can do if you have been harmed by medical malpractice.
Helpful Books
By request, I recently added this new section to my website. I get a small affilitate fee for books that are purchased using these links, which helps to pay for the cost of this website and my blog. Thank you for your support.
Remarkable Recovery: What Extraordinary Healings Tell Us About Getting Well and Staying Well by Caryle Hirshberg and Marc Ian Barasch
An upbeat, entertaining, well-researched, and very helpful book. It is filled with documented stories about patients who either recovered from incurable diseases or greatly exceeded their life expectancies. Most of the stories are about people with cancer, but some are about those with AIDS or multiple sclerosis.
The Art of Getting Well: A Five-Step Plan For Maximizing Health When You Have a Chronic Illness
by David Spero, R.N.
A very informative, enjoyable, and inspiring book for those of us with chronic illnesses. David has included many helpful examples, from his own and other's lives, of what works and what doesn't. He describes standard and alternative treatment options for the reader to consider. He also gives many valuable ideas to help people have better lives whether or not their condition improves.
Blindsided: Lifting a Life Above Illness: A Reluctant Memoir
by Richard Cohen
Richard Cohen has written a poignant, funny, bittersweet, and very touching book. He does an excellent job conveying to his readers the unimaginable difficulty of keeping a high stress (and high profile) job while battling the symptoms of a debilitating illnesses. And his description of the emotional turmoil that his marriage and family experienced trying to cope with his illness provides a rare view of the effects of chronic illness on family life.
The Bloodless Stigmata
by Dee Kite.
Here's Dee's story about her book:
When I was diagnosed with MS, I was devastated. Soon the fatigue was so debilitating, it made it impossible to continue my work as a professor. I decided to see this as an opportunity to pursue the dream of writing a novel. So I spent the next three years writing, riding with cops, interviewing criminologists and medical examiners...the research took me to many strange places, including a crack house!
Finally, The Bloodless Stigmata was born. It's an exciting murder mystery, the story of Sergeant Josephine McGuire and Detective Mike Soigner who are called to investigate the murders of Stephen and Lizzy Tillman. Pressure to solve the "Suburban Slaughter" mounts steadily from the moment the Tillman children call 911. McGuire and Soigner investigate several promising leads, narrowing it down to two prime suspects.
Meanwhile the detectives' personal dilemmas interfere with the progress of the investigation. Tests reveal that McGuire has Multiple Sclerosis, throwing her from a world of order and justice to one of chaos and uncertainty. And a stalker's threat toward Soigner's wife forces him to realize he has not escaped the childhood nightmares of being raised by a harsh fundamentalist preacher.
During the course of the novel Soigner and McGuire grapple with the ups and downs of their personal difficulties. Ultimately they both realize triumph over uncertainty occurs only through surrender.
The Bloodless Stigmata grew not only from my dream to write but also from my experience of living with MS. This story will help readers understand the disease and how it can affect newly diagnosed patients. It is a powerful tool for those who would like to understand the experience of their friends and family who live with MS.
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