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Here are links you may find helpful for learning about and managing your illness, which are the first steps toward having a less stressful and more satisfying and meaningful life:


Links for Specific Chronic Illnesses

General Chronic Illness Support, Connection, and Information Links

Alternative Medicine Links

Help and Advocacy Links

Helpful Books


Arthritis
Arthritis Foundation   Arthritis disease, treatment, and support information.

Arthritis Research and Therapy   Find out about the latest arthritis research here.


Cancer
Mesothelioma.com   Provides lots lf helpful and invaluable information about this often deadly cancer, which is caused by exposure to asbestos.

R. A. Bloch Cancer Foundation   Richard Bloch won his battle with lung cancer in 1980, then created the non-profit R. A. Bloch Cancer Foundation to help others. One of the best features of the site is the many wonderful articles by Mr. Bloch and his wife.


Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS)
CFIDS/Fibromyalgia Self-Help   Excellent site with lots of articles. CFIDS (Chronic Fatigue Immune Dysfunction Syndrome)/Fibromayalgia Self-Help is a non-profit organization that helps people with those diseases.


Crohn's Disease and Ulcerative Colitis
Crohn's and Colitis Foundation of America

Crohn's Disease FAQs   A good description of the disease, its causes, its symptoms, its history, and information about treatments and the side effects of drugs used to treat it.

Bacterial and viral causes of Crohn's disease   A well written article that describes possible causes of Crohn's colitis and how diet, herbs, and probiotics can help treat them.

Crohn's Disease and Stress   Ed Kalski's site is about the many ways Crohn's disease and stress affect each other, but it has lots of other helpful information as well.

Jini Patel Thompson's Site   Jini is the author of Listen To Your Gut, The IBD Remission Diet, and the e-book Listen To Your IBS. Her site has IBS and IBD natural healing forums, a list of health practitioners whom others have recommended, excellent articles about the causes of and natural treatments for inflammatory bowel disease and irritable bowel syndrome, and helpful links.


Chronic Pain

Freedom from Chronic Pain   Professor and Doctor Brian Rothbart has spent many years studying chronic pain, and has developed a unique and effective method for eliminating it in many cases.


Diabetes

American Diabetes Association

National Diabetes Information Clearinghouse   Basic, treatment, and clinical trial information about diabetes.


Fibromyalgia

The Fibromyalgia Support Center   A very helpful resource for people with fibromyalgia. It has over 80 articles to help them learn about and treat this painful disease.

Fibromyalgia Doctor NYC | Chronic Fatigue Syndrome Treatment NYC   Dr Ricki Mitchell specializes in treating fibromyalgia, chronic fatigue syndrome, candida, and vulvodynia, and in bio-identical hormone and thyroid optimization.

Everyday Health's Fibromyalgia Basics page   has information about the causes, the management, and the treatment of fibromyalgia; how to get support when you have it; and many other related topics.

FibroCare Center   Information about Fibromyalgia and the FibroCare Program offered at Point Chiropractic Center in Point Pleasant New Jersey, a multifaceted program to help people who suffer from Fibromyalgia improve their quality of life.

National Fibromyalgia Partnership   Has lots of disease and research information about fibromyalgia.

Also see the CFIDS/Fibromyalgia Self-Help link above.



Irritable Bowel Syndrome

Jini Patel Thompson's Site   Jini is the author of Listen To Your Gut, The IBD Remission Diet, and the e-book Listen To Your IBS. Her site has IBS and IBD natural healing forums, a list of health practitioners whom others have recommended, an excellent article entitled "Natural Remedies That Work: Irritable Bowel Syndrome (IBS)," and helpful links.


Lupus

Lupus Foundation of America

The Lupus Site   Has lupus symptom, diagnosis, and treatment information. Also has a chat room and message boards where you can talk to others with lupus.


Lyme Disease

Lyme Disease Network   Very good medical and support information for Lyme Disease; also has links to other helpful sites.

Lyme Disease Infographic   Also lists Lyme disease symptoms, as well as information about how to avoid getting it.


Multiple Sclerosis

Myelin Repair Foundation   Their mission is "to rapidly accelerate the discovery of myelin repair treatments to improve the lives of people suffering from Multiple Sclerosis (MS)."

Good Docs   A state by state list of doctors who have been given high marks by people with MS.

National Multiple Sclerosis Society


Parkinson's Disease

National Parkinson Foundation gives patients and caregivers the resources to help them fight back.

Parkinson's Disease Society   A UK organization dedicated to supporting all people with Parkinson's, their families, friends and carers. Has lots of helpful information for people newly diagnosed, for young people with Parkinson's, and for families and caregivers.


Ulcerative Colitis
  see Crohn's Disease and Ulcerative Colitis



General Chronic Illness Support, Connection, and Information Links


Yale New Haven Health Library   A wealth of medical information: in-depth descriptions and research about hundreds of diseases including symptoms, prevention methods, and treatment options; information on more than 2,400 prescription medications; self-help resources; complementary medicine; and more.

Diane Kerner's website   Author Diane Kerner has created a community-oriented resource for people with chronic illnesses, which has articles on healthy living, how to deal with financial concerns, and other topics. A free monthly newsletter offers a strong dose of encouragement and information on stress reduction and the importance of keeping a positive mindset.

MDJunction   Has online support groups for many different chronic illnesses.

Shepherd of Hope Christian Chat and Chronic Illness Support   Has a very supportive chat room that has special guest "speakers" from time to time, a list of coping suggestions, and other helpful resources. HealingWell   Features health articles, medical news, doctor-produced video webcasts, community message boards and chat rooms, email, newsletters, books and reviews, and resource directories on diseases, disorders and chronic illness.

Stanford Health Library   Lots of medical information. Also offers free research at (800) 295-5177.

ClinicalTrials   A US government site that lists late-breaking medical news and new medical research studies that need volunteers.

Courage to Give   Jackie Waldman, who has multiple sclerosis herself, has written several inspiring books with stories about people who, suffering from chronic illnesses and other serious physical and emotional hardships, have gone beyond their own suffering to help others; they all found that the contributions they made played a large and essential role in their own healing process.

Psychologist Lori Rokicki's site   The links by disorder button halfway down the page provides links to information and support groups for many chronic illnesses.



Alternative Medicine Links


Natural Therapy Health Consultant Jonathan Campbell   Jonathan's informative site describes natural therapies for chronic fatigue, type II diabetes, cancer, hepatitis C, and many other illnesses and conditions.

healingdeva.com   Alternative medicine descriptions and information. Also lists top alternative doctors.



Help and Advocacy Links


Needy Meds   A website that maintains a list of drug company programs that provide free medications to those in need, and also a list of national and local programs that provide assistance to people with chronic illnesses.

Advocacy for Patients with Chronic Illnesses   Founded by attorney Jennifer Jaff. Free information, advice, and advocacy services from volunteers trained to help you secure your rights.

Patient Advocate Foundation   seeks to safeguard patients' access to medical care, maintenance of employment, and financial stability through mediation with insurers, employers, and creditors.

AbilityLinks   matches people who, because of illness related and other disabilities aren't able to work the standard 40 hour week, with accommodating employers. Non-profit AbilityLinks is based near Chicago but is expanding to provide nationwide service.

Job Accomodation Network  a free service of the Office of Disability Employment Policy that gives people with disablities, including chronic illnesses, resources to help them find a job or start their own business. Has a toll free number to call.

Gimp on the Go Travel Resources  Adam Lloyd, the person behind the Gimp on the Go website, is a quadraplegic who has not let his disability prevent him from having an active academic, business, and travel life. The resources page on his site provides lots of valuable information and links to help disabled travelers.

Medical Malpractice Help  Extensive information about what you can do if you have been harmed by medical malpractice.



Helpful Books


By request, I recently added this new section to my website. I get a small affilitate fee for books that are purchased using these links, which helps to pay for the cost of this website and my blog. Thank you for your support.

Remarkable Recovery: What Extraordinary Healings Tell Us About Getting Well and Staying Well by Caryle Hirshberg and Marc Ian Barasch
An upbeat, entertaining, well-researched, and very helpful book. It is filled with documented stories about patients who either recovered from incurable diseases or greatly exceeded their life expectancies. Most of the stories are about people with cancer, but some are about those with AIDS or multiple sclerosis.

The Art of Getting Well: A Five-Step Plan For Maximizing Health When You Have a Chronic Illness by David Spero, R.N.
A very informative, enjoyable, and inspiring book for those of us with chronic illnesses. David has included many helpful examples, from his own and other's lives, of what works and what doesn't. He describes standard and alternative treatment options for the reader to consider. He also gives many valuable ideas to help people have better lives whether or not their condition improves.

Blindsided: Lifting a Life Above Illness: A Reluctant Memoir by Richard Cohen
Richard Cohen has written a poignant, funny, bittersweet, and very touching book. He does an excellent job conveying to his readers the unimaginable difficulty of keeping a high stress (and high profile) job while battling the symptoms of a debilitating illnesses. And his description of the emotional turmoil that his marriage and family experienced trying to cope with his illness provides a rare view of the effects of chronic illness on family life.

The Bloodless Stigmata by Dee Kite.  
Here's Dee's story about her book:
When I was diagnosed with MS, I was devastated. Soon the fatigue was so debilitating, it made it impossible to continue my work as a professor. I decided to see this as an opportunity to pursue the dream of writing a novel. So I spent the next three years writing, riding with cops, interviewing criminologists and medical examiners...the research took me to many strange places, including a crack house!

Finally, The Bloodless Stigmata was born. It's an exciting murder mystery, the story of Sergeant Josephine McGuire and Detective Mike Soigner who are called to investigate the murders of Stephen and Lizzy Tillman. Pressure to solve the "Suburban Slaughter" mounts steadily from the moment the Tillman children call 911. McGuire and Soigner investigate several promising leads, narrowing it down to two prime suspects.

Meanwhile the detectives' personal dilemmas interfere with the progress of the investigation. Tests reveal that McGuire has Multiple Sclerosis, throwing her from a world of order and justice to one of chaos and uncertainty. And a stalker's threat toward Soigner's wife forces him to realize he has not escaped the childhood nightmares of being raised by a harsh fundamentalist preacher.

During the course of the novel Soigner and McGuire grapple with the ups and downs of their personal difficulties. Ultimately they both realize triumph over uncertainty occurs only through surrender.

The Bloodless Stigmata grew not only from my dream to write but also from my experience of living with MS. This story will help readers understand the disease and how it can affect newly diagnosed patients. It is a powerful tool for those who would like to understand the experience of their friends and family who live with MS.



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